You Are Not Alone in Your Lipedema Journey

Dr. Karen Herbst is a well known lipedema researcher and clinician. She has published numerous articles and studies and has also developed educational resources for patients and healthcare providers.

http://www.lipomadoc.org/lipedema.html

The Fat Disorders Research Society (FDRS) is a non profit organization which aims to improve understanding and treatment of lipedema and other fat disorders.

https://www.fatdisorders.org/

Raise awareness through advocacy, education, and research to improve the lives of people with lipedema and related disorders.

https://lipedemaproject.org/

The Lipedema Foundation is non-profit organization that aims to advance research and education on lipedema. Their website provides information on research studies, patient resources, and fundraising events.

https://www.lipedema.org/

Lipedema Simplified is a website run by a patient with lipedema that offers information and resources on the condition. Their website provides information on diagnosis, treatment options, and lifestyle management tips.

https://www.lipedema-simplified.org/

Lipedema Medical Solutions provides information, diagnoses, and treatment options for people with lipedema.

https://www.lipedema.net/

An optimistic approach to raising awareness, building community, and providing resources to people with lipedema.

https://www.facebook.com/loveandlipedema

Lipedema Sisters USA offers complimentary information on this group page as an interactive community at no charge to users.

https://www.facebook.com/groups/lipedemasistersusa/

This group is for the knowledge, updates and connections about lipedema.

https://www.facebook.com/groups/LipedemaSupport/

This group is a FREE resource designed to help you obtain the insurance coverage or reimbursement for lipedema surgery you’re entitled to. Use this group to discuss how to navigate this extremely complicated and challenging process.

https://www.facebook.com/groups/liposuctioncoverage/

Real women, uncensored, open, vulnerable & unfiltered. All stages of Lipedema welcomed! Lipedema & Lipo-lymphedema patient creating another safe place to be while overcoming what this disease does.

https://www.facebook.com/groups/805024737017473/

This group is to learn about liposuction for lipedema. It is my hope we can find research articles, pictures, stories, Dr. names, addresses, how long have they been practicing, standard of care, types of liposuction, etc.

https://www.facebook.com/groups/liposuctionforlipedema/

Semaglutide and GLP-1 agonists help with insulin resistance, PCOS, resistance to weight loss, inflammation, leptin resistance etc. This group discusses use for people with lipedema.

https://www.facebook.com/groups/1022927051896622/

Information on using Whole Body Vibration Machines, massage guns and other vibration tools to manage symptoms and to improve the overall quality of life for those living with lipedema and other fat disorders.

https://www.facebook.com/groups/vibrationforfatdisorders/

A public page open to all who are interested in learning more about fitness with lipedema.

https://www.facebook.com/LipedemaFitness

This group is to discuss, ask questions, gather information about Medical Grade Compression, Sequential Compression Systems, and how they can help those with Lipedema.

https://www.facebook.com/groups/419542382415597

Later stage lipo-lymphedema before surgery before and after. Sharing hope for relief with larger patients

https://www.instagram.com/palegingerpear/

Raising awareness via relatability! Sharing her journey of simply living to living life to the fullest.

https://www.facebook.com/CatherineHorneAguirre

Lippy Mom of 3 ADHD empowered kiddos. Lipolymphedema, lipedema, lymphedema advocate. Pediatric lipedema advocate.

https://www.instagram.com/thislippymama/

Advocacy and plus size fashion tips for diverse bodies and abilities from a lipedema, disabled, adhd patient perspective.

https://www.instagram.com/livingwithlippy_public